October 3-7 | Starting at $500Ehlers-DAnlos Syndrome &
Hypermobile Spectrum Disorder
Understanding Ehlers-Danlos Syndromes & Hypermobility Spectrum Disorders
What Are Ehlers-Danlos Syndromes (EDS)?
Ehlers-Danlos syndromes (EDS) are a group of 13 inherited connective tissue disorders that affect collagen, resulting in joint hypermobility, tissue fragility, and symptoms that can involve multiple body systems. The most common subtype is hypermobile Ehlers-Danlos syndrome (hEDS), which is diagnosed using clinical criteria because there is currently no genetic test.
In the United States, it is estimated that approximately 1 in 3,100 people have hypermobile EDS (hEDS), though the true prevalence is likely higher due to underdiagnosis.
Symptoms vary from person to person but may include joint instability, chronic pain, fatigue, autonomic dysfunction, gastrointestinal concerns, and frequent injuries.
What Is Hypermobility Spectrum Disorder (HSD)?
Hypermobility Spectrum Disorder (HSD) is a connective tissue disorder characterized by symptomatic joint hypermobility. While many people are naturally flexible, hypermobility only becomes a disorder when it leads to pain, instability, repeated injuries, or functional limitations.
HSD is not a milder version of EDS. Individuals with HSD can experience symptoms that are just as impactful as those with hypermobile EDS. The diagnosis simply reflects that a person does not currently meet the specific diagnostic criteria for hEDS or another hereditary connective tissue disorder.
What is joint hypermobility?
Joint hypermobility means a joint moves beyond the typical range of motion.
Many children and some adults are naturally flexible without experiencing any problems. This is referred to as asymptomatic joint hypermobility and does not require treatment.
People with joint hypermobility often experience:
Joint instability
Frequent sprains or strains
Partial or complete joint dislocations
Chronic musculoskeletal pain
Muscle fatigue
Poor balance or coordination
Headaches
Gastrointestinal symptoms
Dizziness or autonomic dysfunction
Exercise intolerance
Reconnect with your body and mind as you escape the noise of everyday life.
Day OneArrive & Meet
As everyone arrives, we take time to settle in, get comfortable, and begin connecting with those around us. The journey starts here.
Check-In9:00 – 9:30am
Group Activity11:00am
Lunch Break12:30pm
Creative Workshop2:00pm
Dinner6:30pm
Day TwoSet Intentions & Reflect
Together, we pause to consider our goals, hopes, and direction. This is about aligning with ourselves and with the journey ahead. This is a chance to reconnect with what brought you here—your questions, your hopes, your turning points—and consider how they’ve shifted or deepened.
Check-In9:00 – 9:30am
Group Activity11:00am
Lunch Break12:30pm
Creative Workshop2:00pm
Dinner6:30pm
Day ThreeLook Forward & Wrap Up
We explore the possibilities beyond this moment, making space for growth, action, and forward momentum. As we end our time together, we honor the experience, the growth, and the connections made along the way.
Check-In9:00 – 9:30am
Group Activity11:00am
Lunch Break12:30pm
Creative Workshop2:00pm
Dinner6:30pm
How It Works-
Browse our upcoming events to find the one that feels right for you. We host events year-round in all different locations and climates.
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Sign up and pay all required fees to reserve your spot. If plans change, you can cancel up to 14 days before the retreat start to receive a 50% refund.
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After booking, we'll send you a Welcome Packet with everything you need to know—detailed schedules, packing list recommendations, add-ons to consider, and more.
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We'd recommend booking your transportation to and from the event as soon as possible, to ensure you can arrive without any complications or delays.
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Now all that's left to do is pack your bags and get excited for your new adventure.